Family interaction quality program (PQIF) for behavioral management in prader-willi syndrome

Authors

DOI:

https://doi.org/10.15448/1980-8623.2023.2.40413

Keywords:

Prader-Willi Syndrome, Parent-Child Relations, Parenting Education, Behavior, Applied Behavior Analysis

Abstract

Parents and relatives of children with Prader-Willi Syndrome (PWS) face challenges in managing behaviors characteristic of the behavioral phenotype of this condition, which require specific parental skills, that are not always part of their repertoire, and therefore training. The aim of the present study was to apply and evaluate the Family Interaction Quality Program (PQIF) for parents of children with PWS. Seven participants associated to the PWS outpatient clinic of the ICr-HCFMUSP took apart in the study, and measures were applied in the pre, post and follow-up phases. The parenting style score demonstrated an increased use of positive parenting practices for six of the seven participants. Participants also showed improvements in self-observation, expansions in the repertoire of analysis of behaviors and appropriate handling. Limits of this study are discussed; however, the data reinforce the importance of validating tools that attend this population.

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Author Biographies

Cibele Pacheco Gomide, Instituto Par – Behavioral Sciences, São Paulo/SP, Brazil

Psychologist from Universidade Nove de Julho, master in Applied Behavior Analysis and specialist in Analytical-Behavioral Clinic from Instituto Par – Ciências do Comportamento, in São Paulo.

Thays Mendes Aguiar, Children's Institute of the Hospital das Clínicas of FMUSP, São Paulo/SP, Brazil.

Psychiatrist at the Santa Casa de São Paulo Residence. Specialist in Public Health and Primary Care from UFC and Rede UNA-SUS and in Mental Health in Children and Adolescents from CESMIA/UNIFESP.

Simone Sakura Ito, Children's Institute of the Hospital das Clínicas of FMUSP, São Paulo/SP, Brazil.

Doctor from the University of São Paulo (USP). Medical residency in Pediatrics and Pediatric Endocrinology at USP. Specialist in pediatric endocrinology from USP.

Ruth Rocha Franco, Children's Institute of the Hospital das Clínicas of FMUSP, São Paulo/SP, Brazil.

Doctor from the University of São Francisco. Residency in Pediatrics and Pediatric ICU at Hospital Infantil Menino Jesus. Specialist in Pediatric Endocrinology from the Instituto da Criança (FM-USP). Master of Science from the Hospital das Clínicas of the Faculty of Medicine of USP.

Caroline de Gouveia Buff Passone, Children's Institute of the Hospital das Clínicas of FMUSP, São Paulo/SP, Brazil.

Doctor from the ABC School of Medicine, she completed a medical residency in Pediatrics at the University of São Paulo (USP), with an emphasis on Endocrinology. She has a master's and doctorate in Pediatrics from USP, and a postdoctoral degree from the University of Paris – Hopital Necker.

Durval Damiani, Children's Institute of the Hospital das Clínicas of FMUSP, São Paulo/SP, Brazil.

Doctor from the University of São Paulo (USP). Master and PhD in Medicine (Pediatrics) from USP. He also holds a full professorship at USP and is head of the Pediatric Endocrinology Unit at the Children's Institute of the Hospital das Clínicas of the Faculty of Medicine of USP.

Clarissa Moreira Pereira, Instituto Par – Behavioral Sciences, São Paulo/SP, Brazil.

Psychologist from the Catholic University of São Paulo (PUC-SP). Specialist in Behavioral and Cognitive Psychology from USP. Master in Experimental Psychology: Behavior Analysis from PUC-SP. PhD in Experimental Psychology from USP. Professor at Instituto Par – Behavioral Sciences.

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Published

2023-12-22

How to Cite

Pacheco Gomide, C., Mendes Aguiar, T., Sakura Ito, S., Rocha Franco, R., de Gouveia Buff Passone, C., Damiani, D., & Moreira Pereira, C. (2023). Family interaction quality program (PQIF) for behavioral management in prader-willi syndrome. Psico, 54(2), e40413. https://doi.org/10.15448/1980-8623.2023.2.40413

Issue

v. 54 n.2 (2023): Special Issue - Developmental and Educational Psychology

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